If you or a loved one has a CDI and needs help, please visit our In Your State page for local healthcare providers, clinical trials, advocates and other resources.
Network pharmacies can help support patients prescribed DIFICID. Patient support features include: Information and assistance regarding access to therapy (including benefits investigation and reimbursement requirements), Product availability, Next-day delivery of medications, Disease-related educational materials for patients, and 24-hour patient counseling services. For more information, please visit: https://www.merckconnect.com/dificid/pharmacy-network.html
Merck also has a patient assistance program for DIFICID. Visit Merck Helps for details and to apply.
Clostridium difficile: A Patient’s Guide
Written by a Chris O’Neal, a CDI survivor and caregiver (when his wife had a CDI), and his gastroenterologist, this book is an excellent guide for lay people to understand CDIs, treatment and life after the infection. Get it here: C. diff: A Patient’s Guide by Christopher M. O’Neal, PhD and Raf Rizk, MD.
C. difficile Support Group
This message board moderated by C. diff survivors and caregivers has lots of helpful information and supportive people: Clostridium difficile Support Group
Facebook has a number of groups for people fighting C. diff. Please note that you will need a Facebook account to access them. Here are a two of our favorites:
PLF’s Support Group – Moderated by PLF, this group is focused on providing information and emotional support for C. diff patients and family members.
Cdiff Support – Moderated by Advocates Council member Lisa N., a friendly group with a wealth of knowledge.
C. diff Care Guide
This guide contains all the information needed to understand how to be diagnosed, what treatments are available, what to expect in the case of a severe or recurrent infection, and much more. Sponsored by Bio-K Plus, a Kerry Company, the guide was developed in consultation with C. diff survivors and caregivers, as well as reviewed for medical accuracy by PLF’s Scientific Advisory Council. Please click this link below to register and receive an email with a link to download the guide.
What Doesn’t Kill You: A Life With Chronic Illness – Lessons from a Body in Revolt details journalist Tessa Miller’s battle with Crohn’s Disease including multiple C. diff infections. Tessa’s book is full of useful information about how to be an advocate for yourself, details about her bouts of C. diff infection, and personal anecdotes that are relatable, warm and often funny.
by C. diff survivor and PLF Advocate Susan O’Brien looks at her life in dealing with a chronic disease that left her vulnerable to multiple C. diff infections. Susan’s book also explores how her lifelong struggle to be healthy brought her wisdom and deepened her faith. It’s also very amusing.
Resources from Allied Organizations
- Update to Allergies & Your Gut (2020)
Joan Hardin returns with a reflection on surviving C. diff and managing her health ten years post-infection.
- Allergies & Your Gut (2011)
Great blog focusing on the importance of a health microbiome by CDI survivor Joan Hardin
- Sepsis Symptoms from Sepsis Alliance
- Antibiotic Safety: Do’s and Don’ts at the Dentist
- Deadly Diarrhea Infographic