The Peggy Lillis Foundation’s Advocates Council is a nationwide network of individuals whose lives have been impacted by a Clostridium difficile (C. diff) infection, whether directly or through a loved one. Comprised of volunteer community leaders, the Council is the nucleus for our national movement to raise C. diff awareness by educating the public, empowering advocates and shaping policy.

Supported by PLF, Advocates engage in a wide range of activities to educate the public, support and empower CDI sufferers and caregivers, lobby for CDI-related laws and regulations at the state and federal level, and help build a powerful and sustainable movement.

Jessica T., West Virginia
WHY I’M AN ADVOCATE:
I’m an advocate because I am a C. diff survivor, and I am very passionate about not wanting anyone to ever have to go through what I have gone through. I feel that it’s important to get as much information out there and educate as many people as possible so that we will have a better chance at stopping this monster from becoming worse than it already is.
Paula, New York
WHY I’M AN ADVOCATE:
I am an advocate in memory of my mom, who passed away from C. diff. Nothing would please me more than seeing a world where C. diff is eradicated. Seeing prevention and cure would help my family to cope with her loss and remind us that her life mattered.
Lucy, Florida
WHY I’M AN ADVOCATE:
I am a C. diff advocate because C. diff prevention and mandatory reporting is a cause worth fighting for. One’s health is a treasure, and C. diff is like a thief in the night, robbing one’s health and sometimes taking a life with lightning speed. I watched C. diff ravage my mother’s body in the throes of her infection and rob her of the dignity of her final years of life, leaving a fiercely independent woman dependent for her every need. I am an advocate for her and for everyone like her who has not been counted and does not have a voice. Sometimes I think if, on a given day, in a single moment, one healthcare worker had taken the time to wash his or her hands, perhaps all this suffering could have been spared. There’s much to be done. 'I may only have one match, but I can make an explosion.'
Maryann, Florida
WHY I’M AN ADVOCATE:
I am an advocate because I survived this deadly disease, and I know that many others are not so lucky. I researched and found a support group that mentioned the Peggy Lillis Foundation. After reading what happened to Peggy, I was drawn to her story and her courageous fight to live, as we had the same story—a simple dental procedure. I became an advocate because I want people to know there is hope and help. You can beat this!
Angela, California
WHY I’M AN ADVOCATE:
I am an advocate because the only way to effect real change is to bring the problem out into the open. We need to know how many people are suffering C. diff infections each year and how many people are dying from CDIs. People need to know about C. diff. People need to understand the dangers that come with antibiotic use. I want to normalize the conversation about C. diff so that others outside of the medical community know what Clostridium difficile infections are and how to better protect themselves. Legislation and funding need to reflect the immense suffering and toll that C. diff infections inflict upon hundreds of thousands of Americans each year.
Brenna, Oregon
WHY I’M AN ADVOCATE:
I am an advocate because, having survived recurrent C. diff, I want to bring awareness to the plight of those currently suffering from this illness. I want them to know they are not alone in what they are facing. Education and awareness will empower us to make informed choices about our care and treatment options.
Apryl, Ohio
WHY I’M AN ADVOCATE:
I am an advocate for the Peggy Lillis Foundation because I am fortunate to have survived a near terminal C. diff infection. Knowledge is key to both caregivers and patients.
Katie, Utah
WHY I’M AN ADVOCATE:
I'm an advocate because I believe nobody should suffer from a preventable illness like I did. Through awareness and advocation, I believe we can limit the risk of C. diff infections throughout the country.
Amy D., Ohio
WHY I’M AN ADVOCATE:
Connecting with the Peggy Lillis Foundation and other sufferers provided support when I had nowhere else to turn. I became an advocate for the Peggy Lillis Foundation so I could help others whose lives have been affected by C. diff. 
Christina F., Missouri
WHY I’M AN ADVOCATE:
For me, advocacy is crucial when it comes to an infection such as C. diff, which does not get the alarm and attention it deserves. As an advocate, I wish to comfort and support those struggling with this cruel disease, educate as many as I can along the way, and lobby to change policy regarding reporting C. diff, how it is handled in health care situations and future infection prevention.
Ricky S., California
WHY I’M AN ADVOCATE:
I am an advocate because C. diff does not have to be this prevalent. Having C. diff in my early twenties did not defeat me, rather it empowered me to speak up and advocate for this horrible disease. I know that C. diff does defeat so many people, so I’d like to be there as support to let them know that they are not alone.
Anne Fox, Ohio
WHY I’M AN ADVOCATE:
I am an Advocate because I am a C. diff. survivor, and I want to raise awareness about this nasty stuff. Most people I talk to have never heard of it. They are shocked when I tell them my story.
Debra Jean, Massachusetts
WHY I’M AN ADVOCATE:
I am an advocate because I know firsthand what it is like to live with C. diff and how a flare up can change your lifestyle. I am also an advocate so that those who do not choose to be a voice can have a place to find one.
Rachel P., Kansas
WHY I’M AN ADVOCATE:
I am an advocate to help let people know about C. diff because I did not know about it before I contracted this disease. If people know about it and how to stop the spread of C. diff, fewer people would get it.
Sarah J., Ohio
WHY I’M AN ADVOCATE:
I want to be part of the solution. C. diff has impacted my life for almost 8 years. I was diagnosed with C. diff for 4 years before receiving a FMT, and now almost 4 years after my FMT, I am still positive for C. diff. Too many people I care about have been diagnosed with C. diff, and I never want someone I love to experience what I have due to C. diff.
Sheryl S., New York
WHY I’M AN ADVOCATE:
I'm an advocate because I've seen two family members suffer with this disease. I want no one to ever again suffer the pain, humiliation, and terror that this disease inflicts on sufferers and their families. I want to help spread the message how to prevent this killer from doing any more damage .
Teri H., Colorado
WHY I’M AN ADVOCATE:
I am an advocate because I have witnessed the devastating effects of C. diff – to patients, families, and the healthcare community. And personally, I have lost a friend to C. diff. As an infection Preventionist, I feel that I have the ability to positively influence C. diff acquisition and outcomes by providing education and guiding evidence-based practice.
Sara I., Wyoming
WHY I’M AN ADVOCATE:
I witnessed my child suffer through C. diff due to antibiotics. I feel an awareness to the growing risk of C. diff infections needs to be addressed, and young parents need to know the risk, yet benefits, of antibiotics. I'm an advocate because I understand what fear comes upon a parent when their child is fighting C. diff, and my goal is to bring them hope during that time.
Christina M., Ohio
WHY I’M AN ADVOCATE:
As a C. diff survivor, I want to make sure others are protected through laws, advocacy, and support in regards to this nasty illness.
Patti F., Massachusetts
WHY I’M AN ADVOCATE:
I want to help people with C. diff and their families have the latest knowledge on this disease, the testing, medications, and most of all to help them voice their concerns and frustrations, especially if they are reluctant to ask their physician. Even though I am a nurse, I still had no idea of the devastation this illness can cause until I came down with it. The anxiety alone can be crippling, so if it's just to have someone to listen, I would be honored to just listen.
Jackie Smith, Georgia
WHY I’M AN ADVOCATE:
I became an advocate after having a C. diff infection myself. I had never heard of it, and that seems to be the norm for most who do get it. I am now working everyday to bring C. diff awareness to the forefront in Georgia. I am here to help you and/or your family members understand C. diff. Please contact me anytime I will get back with you right away.
Melissa C., Massachusetts
WHY I’M AN ADVOCATE:
I am an advocate because I don't want any one else to lose so much of their life as I did. I lost years to physical illness until finally having a fecal transplant. My children were very young then and had to grow up only knowing me as sick. Even after I was physically healed, C. diff has left me with depression, anxiety, OCD, and an eating disorder. I don't want anyone else to suffer or watch a family member suffer like that.
Patricia Pooley, Kansas
Linda R., Washington
WHY I’M AN ADVOCATE:
My journey as a patient safety advocate began as a result of medical harm from badly designed and poorly regulated medical devices - Metal on Metal hip implants. During a six year period in which I had 5 hip replacements, I felt alone, alienated from family and friends who did not understand, shut out by the wall of silence in the medical community, and desperate for answers. Hoping that I might find a place of support, I reached out to Consumers Union Safe Patient Project, who put me in touch with others in my area and across the nation who had experienced medical harm. Although their stories were different from mine, together we found encouragement and strength. I became an advocate as part of my own journey toward wholeness, but I remain an advocate to help assure that others will not be without resources and alone in their pain and suffering.
Denise K., Michigan
WHY I’M AN ADVOCATE:
When dealing with C. diff, I encountered obstacles in accessing testing and treatments. I realized we need better lab tests, we need doctors to listen to us, doctors that treat based on symptoms and don't just rely on test results. We need access to more treatment options, and better first line treatments. I became an advocate to be a voice, to try and help make these changes, as they are desperately needed.
Lisa N., Missouri
WHY I’M AN ADVOCATE:
I am an advocate so others dealing with C. diff never have to feel alone and to help provide patients with accurate, up to date information regarding diagnosis and treatment options.
Catherine Duff, Indiana
WHY I’M AN ADVOCATE:
I'm an Advocate because I will never forget the feelings of helplessness and hopelessness I had when dealing with eight episodes of C. diff. in seven years. I promised myself I would do whatever I could to keep others from having those feelings.
Meghan M., Rhode Island
WHY I’M AN ADVOCATE:
I advocate for my Mom a voice that can no longer be heard, to save save lives of the future and bring awareness to the present.
Dexter Family, Maryland
WHY I’M AN ADVOCATE:
Being Advocates help us to honor our wife and mother, Judy Dexter.
Megan F., Pennsylvania
WHY I’M AN ADVOCATE:
I simply cannot sit back while this disease continues to destroy lives for it almost took mine.