The Peggy Lillis Foundation’s Advocates Council is a nationwide network of individuals whose lives have been impacted by a Clostridium difficile (C. diff) infection, whether directly or through a loved one. Comprised of volunteer community leaders, the Council is the nucleus for our national movement to raise C. diff awareness by educating the public, empowering advocates and shaping policy.

Supported by PLF, Advocates engage in a wide range of activities to educate the public, support and empower CDI sufferers and caregivers, lobby for CDI-related laws and regulations at the state and federal level, and help build a powerful and sustainable movement.

Apryl, Ohio
WHY I’M AN ADVOCATE:
“I am an advocate for the Peggy Lillis Foundation because I am fortunate to have survived a near terminal C. diff infection. Knowledge is key to both caregivers and patients.”
Katie, Utah
WHY I’M AN ADVOCATE:
“I'm an advocate because I believe nobody should suffer from a preventable illness like I did. Through awareness and advocation, I believe we can limit the risk of C. diff infections throughout the country. ”
Amy D., Ohio
WHY I’M AN ADVOCATE:
“Connecting with the Peggy Lillis Foundation and other sufferers provided support when I had nowhere else to turn. I became an advocate for the Peggy Lillis Foundation so I could help others whose lives have been affected by C. diff. ”
Christina F., Missouri
WHY I’M AN ADVOCATE:
“I am an advocate because together we can positively impact the lives of those suffering with C. diff through comfort, support and education. ”
Ricky S., California
WHY I’M AN ADVOCATE:
“I am an advocate because C. diff does not have to be this prevalent. Having C. diff in my early twenties did not defeat me, rather it empowered me to speak up and advocate for this horrible disease. I know that C. diff does defeat so many people, so I’d like to be there as support to let them know that they are not alone.”
Anne Fox, Ohio
WHY I’M AN ADVOCATE:
“I am an Advocate because I am a C. diff. survivor, and I want to raise awareness about this nasty stuff. Most people I talk to have never heard of it. They are shocked when I tell them my story.”
Debra Jean, Massachusetts
WHY I’M AN ADVOCATE:
“I am an advocate because I know firsthand what it is like to live with C. diff and how a flare up can change your lifestyle. I am also an advocate so that those who do not choose to be a voice can have a place to find one.”
Rachel P., Kansas
WHY I’M AN ADVOCATE:
“I am an advocate to help let people know about C. diff because I did not know about it before I contracted this disease. If people know about it and how to stop the spread of C. diff, fewer people would get it.”
Sarah J., Ohio
WHY I’M AN ADVOCATE:
“I want to be part of the solution. C. diff has impacted my life for almost 8 years. I was diagnosed with C. diff for 4 years before receiving a FMT, and now almost 4 years after my FMT, I am still positive for C. diff. Too many people I care about have been diagnosed with C. diff, and I never want someone I love to experience what I have due to C. diff.
Sheryl S., New York
WHY I’M AN ADVOCATE:
“I'm an advocate because I've seen two family members suffer with this disease. I want no one to ever again suffer the pain, humiliation, and terror that this disease inflicts on sufferers and their families. I want to help spread the message how to prevent this killer from doing any more damage . ”
Teri H., Colorado
WHY I’M AN ADVOCATE:
“I am an advocate because I have witnessed the devastating effects of C. diff – to patients, families, and the healthcare community. And personally, I have lost a friend to C. diff. As an infection Preventionist, I feel that I have the ability to positively influence C. diff acquisition and outcomes by providing education and guiding evidence-based practice.”
Sara I., Wyoming
WHY I’M AN ADVOCATE:
“I witnessed my child suffer through C. diff due to antibiotics. I feel an awareness to the growing risk of C. diff infections needs to be addressed, and young parents need to know the risk, yet benefits, of antibiotics. I'm an advocate because I understand what fear comes upon a parent when their child is fighting C. diff, and my goal is to bring them hope during that time. ”
Christina M., Ohio
WHY I’M AN ADVOCATE:
“As a C. diff survivor, I want to make sure others are protected through laws, advocacy, and support in regards to this nasty illness.”
Patti F., Massachusetts
WHY I’M AN ADVOCATE:
“I want to help people with C. diff and their families have the latest knowledge on this disease, the testing, medications, and most of all to help them voice their concerns and frustrations, especially if they are reluctant to ask their physician. Even though I am a nurse, I still had no idea of the devastation this illness can cause until I came down with it. The anxiety alone can be crippling, so if it's just to have someone to listen, I would be honored to just listen.”
Jackie Smith, Georgia
WHY I’M AN ADVOCATE:
“I became an advocate after having a C. diff infection myself. I had never heard of it, and that seems to be the norm for most who do get it. I am now working everyday to bring C. diff awareness to the forefront in Georgia. I am here to help you and/or your family members understand C. diff. Please contact me anytime I will get back with you right away.”
Melissa C., Massachusetts
WHY I’M AN ADVOCATE:
“I am an advocate because I don't want any one else to lose so much of their life as I did. I lost years to physical illness until finally having a fecal transplant. My children were very young then and had to grow up only knowing me as sick. Even after I was physically healed, C. diff has left me with depression, anxiety, OCD, and an eating disorder. I don't want anyone else to suffer or watch a family member suffer like that.”
Patricia Pooley, Kansas
WHY I’M AN ADVOCATE:
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Linda R., Washington
WHY I’M AN ADVOCATE:
“My journey as a patient safety advocate began as a result of medical harm from badly designed and poorly regulated medical devices - Metal on Metal hip implants. During a six year period in which I had 5 hip replacements, I felt alone, alienated from family and friends who did not understand, shut out by the wall of silence in the medical community, and desperate for answers. Hoping that I might find a place of support, I reached out to Consumers Union Safe Patient Project, who put me in touch with others in my area and across the nation who had experienced medical harm. Although their stories were different from mine, together we found encouragement and strength. I became an advocate as part of my own journey toward wholeness, but I remain an advocate to help assure that others will not be without resources and alone in their pain and suffering.”
Denise K., Michigan
WHY I’M AN ADVOCATE:
“When dealing with C. diff, I encountered obstacles in accessing testing and treatments. I realized we need better lab tests, we need doctors to listen to us, doctors that treat based on symptoms and don't just rely on test results. We need access to more treatment options, and better first line treatments. I became an advocate to be a voice, to try and help make these changes, as they are desperately needed.”
Lisa N., Missouri
WHY I’M AN ADVOCATE:
“ I am an advocate so others dealing with C. diff never have to feel alone and to help provide patients with accurate, up to date information regarding diagnosis and treatment options. ”
Catherine Duff, Indiana
WHY I’M AN ADVOCATE:
“I'm an Advocate because I will never forget the feelings of helplessness and hopelessness I had when dealing with eight episodes of C. diff. in seven years. I promised myself I would do whatever I could to keep others from having those feelings. ”
Meghan M., Rhode Island
WHY I’M AN ADVOCATE:
“I advocate for my Mom a voice that can no longer be heard, to save save lives of the future and bring awareness to the present.”
Dexter Family, Maryland
WHY I’M AN ADVOCATE:
“Being Advocates help us to honor our wife and mother, Judy Dexter.”
Megan F., Pennsylvania
WHY I’M AN ADVOCATE:
“I simply cannot sit back while this disease continues to destroy lives for it almost took mine.”