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Judy Dexter PDF Print E-mail

Contributed by Judy Dexter's Clan

Our mom went to the hospital in December 2012 when she was having difficulty breathing. She was admitted for a lung infection and treated with antibiotics for 8 days. Our family was not prepared for the Judy Dextertorment that the following months would bring.

Three days after being discharged from the hospital, she had uncontrollable diarrhea which resulted in severe dehydration. Her doctor prescribed her a series of diarrhea medicine and she was given instructions to change her diet to bulk foods. It was another 2 1/2 weeks, upon returning to the hospital, that she was diagnosed with Clostridium difficile (C. diff).

We knew little about it but learned very quickly. It became second nature for our family to put on protective gowns and gloves before visiting her room.

Last Updated on Sunday, 07 July 2013 20:05
Megan F. PDF Print E-mail

My name is Megan and I live in Pennsylvania. I am 29, married and have three small children. I have struggled with Clostridium difficile (C. diff) for the past year before receiving a fecal transplant, which has MeganFernslersuccessfully treated the condition up to this point. I want to share my story to help others who are battling C. diff because throughout the past year, I often felt frustrated, angry, scared and depressed along with being frequently sick. Most of all, I want others to know that they are not alone, they are not isolated and there are options to consider when the "standard" treatments don't work.

So how did a healthy 29 year old woman get C. diff? Well, that's a great question since we are not sure at what "point" I got C. diff, and it took nearly a year to figure out what caused it. My first indication that something wasn't right was in mid-2012 when I was pregnant with my 3rd child I would often have entire days of vomiting and diarrhea. We just chalked it up to my not having a gallbladder (I still get attacks) and my being pregnant at the time.

Last Updated on Sunday, 07 July 2013 20:05
Teresa Mustain PDF Print E-mail

My sister and I lost our mother, Teresa Mustain, on March 7th, 2013. She was 57 and had been battling C. diff since October 2011. We were not surprised when she finally starrandTeresa Mustainpassed away, but shocked nonetheless. Her health continuously declined from that first bout.

Mom was diagnosed with Fibromyalgia back in 1992. She was also diabetic.

My mother was in and out of the hospital several times in the last 18 months. They'd rehydrate her, give her an antibiotic, and send her home. I think she started with the basic Metronidazole and that was repeated between October 2011 and May 2012. May 2012 found her hospitalized again. This time, they started her on Vancomycin. She was on this for 7 months straight - and she said she almost felt normal. Within a month of being off of it, she was back in the hospital for C. diff. They put her back on the Vancomycin. She finished that round and within a few weeks was yet again back in the hospital - this puts us at February 2013 - 3 days before her first of 3 surgeries. The surgery got postponed. This round of C. diff caused her kidneys and liver to begin failing.

Last Updated on Sunday, 07 July 2013 20:01
MaryAnn Dillon PDF Print E-mail

My name is MaryAnn Dillon. I am a Registered Nurse in the Emergency Room at North Shore-Long Island Jewish Health System, where I have worked for about 25 years. I have worked maryann_dillonwith Helen Biegel, Peggy Lillis' sister for four years and we have talked about what happened to Peggy. We were all shocked and upset hearing the story of a healthy, 56-year-old dying from a Clostridium difficile (C. diff) infection.

About nine months ago, while I was working in the ER, I started to not feel well and lost consciousness at work. After an evaluation by North Shore-LIJ doctors, it was discovered that I had high white blood cell count and a low red blood cell count. The low RBC indicated a gastrointestinal bleed, for which I was treated, including a colonoscopy. The high WBC indicated an infection, so I was started on an antibiotic.

Last Updated on Sunday, 07 July 2013 20:03
Ricky Spiese PDF Print E-mail

In January of 2008, my Grandmother was placed in the hospital for kidney failure. Watching my Grandmother wither away to almost nothing was a huge strain on my Ricky_Spieseheart, especially after learning about what she was struggling with. We were always visiting my Grandmother, at least twice a week, and never took any sanitary precautions when we came to see her... As far as we were concerned, we never had to. My Grandmother unfortunately died about 9 months after she entered the hospital. She was an amazing woman and we still miss her to this day.

In April 2011, I took Cipro for a stye that had developed on my eye. The Cipro came in the form of eye drops and luckily did the trick with my stye. About a week or two later, my symptoms began. I was unable to sit through my classes at my University due to the constant diarrhea I was experiencing, and I had extreme pain in my stomach. After a couple of days it would subside, slightly, yet it always came back. Upon visiting my general practitioner, I was told to simply take fiber at bedtime. Not only did this not help my symptoms, it seemed to make them worse. I scheduled yet another appointment with my general practitioner, and submitted a stool sample to be tested. My results came back positive for the parasite Blastocystis Hominis, which my doctor described as something "that normally does not cause too much trouble." Regardless, I felt it necessary to be treated. I was placed on Flagyl for ten days, and felt like a million bucks afterwards. About two weeks later though, a few days before my 24th birthday, the diarrhea returned. I submitted yet another stool sample, yet this one came up positive for Clostridium difficile.

Last Updated on Sunday, 07 July 2013 20:04
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Disclaimer: The information on this website is not intended to replace the advice of a doctor. The Peggy Lillis Memorial Foundation disclaims any liability
for the decisions you make based on this information and ecnourages you to visit your doctor if you suspect you have Clostridium difficile.