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C. diff Stories
Anthony Del Re PDF Print E-mail

Staten Island, NY

As told by his mother, Gina Del ReDelReFamily

At 19 months old, my son, Anthony, was diagnosed with C. difficile in September 2013.

When I received this horrifying phone call from Anthony's gastroenterologist, my jaw dropped. What is this? Can you spell that?  How could he have contracted this?

Now I can tell you a lot about C. diff, after living through it in my home and watching my son through two bouts of it.

Anthony is a strong, happy, lovable little boy who was born with two rare genetic diseases. His life is not easy, but he is a warrior.  Anthony is immuno-compromised and gets sick often, which results in many hospital visits, blood tests, and sometimes multiple doctor visits per week at various specialists. But even in this context, battling two rounds of C. diff was unimaginable and just awful.

In August 2013, my husband and I noticed something irregular about Anthony's middle finger on one of his hands. His cuticle was inflamed and had pus beneath it. We immediately were concerned and brought him to our pediatrician.  The pediatrician took a look at his finger and did a test to see if it was a staph infection.  He sent us home with an antibiotic: Cefadroxil.

Last Updated on Saturday, 26 July 2014 10:27
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David L’Heureux PDF Print E-mail

Georgia

I was a healthy, 39 year old man who was loving life, traveling the world and working my dream job until a trip to China started a downhill spiral that continues today. InDavid 2004, on a business trip in China when I developed abdominal cramping and diarrhea. Thinking it was a traveler's illness, I took some Cipro and continued my work. I had been teaching a course for physicians in a Shanghai hospital, nowhere near any patient treatment areas.

The following day, I awoke with increased abdominal cramping, a slightly distended abdomen, non-stop diarrhea and a fever. Still thinking it was caused by something I had eaten, I continued teaching. Since this was my last day in China, I struggled through the day with my fever rising, chills, increased distention, frequent diarrhea and worsening dehydration. The 13 hour plane ride back to the USA was awful, I was shivering and sweating, I couldn't stay out of the lavatory, the odor was nauseating and my abdomen looked like I was pregnant. I told the flight attendant that I was sick and to keep the one lavatory closed off for me only. I was one of 3 in First Class and there were 2 lavatories).

Last Updated on Saturday, 26 July 2014 10:27
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Judy Dexter PDF Print E-mail

Contributed by Judy Dexter's Clan

Our mom went to the hospital in December 2012 when she was having difficulty breathing. She was admitted for a lung infection and treated with antibiotics for 8 days. Our family was not prepared for the Judy Dextertorment that the following months would bring.

Three days after being discharged from the hospital, she had uncontrollable diarrhea which resulted in severe dehydration. Her doctor prescribed her a series of diarrhea medicine and she was given instructions to change her diet to bulk foods. It was another 2 1/2 weeks, upon returning to the hospital, that she was diagnosed with Clostridium difficile (C. diff).

We knew little about it but learned very quickly. It became second nature for our family to put on protective gowns and gloves before visiting her room.

Last Updated on Sunday, 07 July 2013 20:05
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Megan F. PDF Print E-mail

My name is Megan and I live in Pennsylvania. I am 29, married and have three small children. I have struggled with Clostridium difficile (C. diff) for the past year before receiving a fecal transplant, which has MeganFernslersuccessfully treated the condition up to this point. I want to share my story to help others who are battling C. diff because throughout the past year, I often felt frustrated, angry, scared and depressed along with being frequently sick. Most of all, I want others to know that they are not alone, they are not isolated and there are options to consider when the "standard" treatments don't work.

So how did a healthy 29 year old woman get C. diff? Well, that's a great question since we are not sure at what "point" I got C. diff, and it took nearly a year to figure out what caused it. My first indication that something wasn't right was in mid-2012 when I was pregnant with my 3rd child I would often have entire days of vomiting and diarrhea. We just chalked it up to my not having a gallbladder (I still get attacks) and my being pregnant at the time.

Last Updated on Sunday, 07 July 2013 20:05
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Teresa Mustain PDF Print E-mail

My sister and I lost our mother, Teresa Mustain, on March 7th, 2013. She was 57 and had been battling C. diff since October 2011. We were not surprised when she finally starrandTeresa Mustainpassed away, but shocked nonetheless. Her health continuously declined from that first bout.

Mom was diagnosed with Fibromyalgia back in 1992. She was also diabetic.

My mother was in and out of the hospital several times in the last 18 months. They'd rehydrate her, give her an antibiotic, and send her home. I think she started with the basic Metronidazole and that was repeated between October 2011 and May 2012. May 2012 found her hospitalized again. This time, they started her on Vancomycin. She was on this for 7 months straight - and she said she almost felt normal. Within a month of being off of it, she was back in the hospital for C. diff. They put her back on the Vancomycin. She finished that round and within a few weeks was yet again back in the hospital - this puts us at February 2013 - 3 days before her first of 3 surgeries. The surgery got postponed. This round of C. diff caused her kidneys and liver to begin failing.

Last Updated on Sunday, 07 July 2013 20:01
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Disclaimer: The information on this website is not intended to replace the advice of a doctor. The Peggy Lillis Memorial Foundation disclaims any liability
for the decisions you make based on this information and ecnourages you to visit your doctor if you suspect you have Clostridium difficile.