The Peggy Lillis Foundation’s Advocates Council is a nationwide network of individuals whose lives have been impacted by a Clostridium difficile (C. diff) infection, whether directly or through a loved one. Comprised of volunteer community leaders, the Council is the nucleus for our national movement to raise C. diff awareness by educating the public, empowering advocates and shaping policy.

Supported by PLF, Advocates engage in a wide range of activities to educate the public, support and empower CDI sufferers and caregivers, lobby for CDI-related laws and regulations at the state and federal level, and help build a powerful and sustainable movement.

Patricia Pooley, Kansas
WHY I’M AN ADVOCATE:
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Linda R., Washington
WHY I’M AN ADVOCATE:
“My journey as a patient safety advocate began as a result of medical harm from badly designed and poorly regulated medical devices - Metal on Metal hip implants. During a six year period in which I had 5 hip replacements, I felt alone, alienated from family and friends who did not understand, shut out by the wall of silence in the medical community, and desperate for answers. Hoping that I might find a place of support, I reached out to Consumers Union Safe Patient Project, who put me in touch with others in my area and across the nation who had experienced medical harm. Although their stories were different from mine, together we found encouragement and strength. I became an advocate as part of my own journey toward wholeness, but I remain an advocate to help assure that others will not be without resources and alone in their pain and suffering.”
Denise K., Michigan
WHY I’M AN ADVOCATE:
“When dealing with C. diff, I encountered obstacles in accessing testing and treatments. I realized we need better lab tests, we need doctors to listen to us, doctors that treat based on symptoms and don't just rely on test results. We need access to more treatment options, and better first line treatments. I became an advocate to be a voice, to try and help make these changes, as they are desperately needed.”
Lisa N., Missouri
WHY I’M AN ADVOCATE:
“ I am an advocate so others dealing with C. diff never have to feel alone and to help provide patients with accurate, up to date information regarding diagnosis and treatment options. ”
Catherine Duff, Indiana
WHY I’M AN ADVOCATE:
“I'm an Advocate because I will never forget the feelings of helplessness and hopelessness I had when dealing with eight episodes of C. diff. in seven years. I promised myself I would do whatever I could to keep others from having those feelings. ”
Meghan M., Rhode Island
WHY I’M AN ADVOCATE:
“I advocate for my Mom a voice that can no longer be heard, to save save lives of the future and bring awareness to the present.”
Dexter Family, Maryland
WHY I’M AN ADVOCATE:
“Being Advocates help us to honor our wife and mother, Judy Dexter.”
Megan F., Pennsylvania
WHY I’M AN ADVOCATE:
“I simply cannot sit back while this disease continues to destroy lives for it almost took mine.”